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Video Introduction | MyNCBI Bibliography | Research Seminar Video
I. General Research Interest
- Children Who Require Medical Technology
1. Child and adolescent experiences
2. Caregiver perceptions and educational needs
3. Intervention development
4. Health care utilization - Methodological Issues, Definitions of the Population, and Theory Development
1. Methods for recruitment and data collection
2. Definitions and terminology
– Children who require medical technology and technology dependence
3. Theoretical and conceptual analysis
– Resilience
– Health literacy - Care of Children with Chronic Illness and Complex Care Needs
a. Tracheostomy and feeding tube care for children
b. Mothers of children with developmental disabilities
c. Hemoglobinopathies of sickle cell disease and thalassemia
II. Current Research Projects
- Web-based Modules to Support Young Children Who Require Medical Technology
and Their Caregivers
a. Creating Opportunities for Personal Empowerment: Symptom and Technology Management Resources (COPE-STAR) - The Use of Actigraphy and Videosomnography to Measure Sleep-Wake Patterns in Mothers and Their School-Aged Children with Developmental Disabilities: A Feasibility Study (Mentor; Lee- PI, nursing)
- Association between Safety Perceptions and Medical Error Reporting among Nurses and Respiratory Therapists in the Neonatal Intensive Care Unit (Mentor; Culbreath- PI, respiratory therapy)
III. Research Skills
- Recruitment
- Qualitative interviews
- Development and adaptation of measures, surveys, and interview guides
- Retrospective chart review and data abstraction
- Integrative and systematic reviews
- Web-based content and interventions
- Qualitative and quantitative data analysis
Complex chronic illness
Children and adolescents
Caregivers and families
Medical technology
Tracheostomy
Feeding tube
Technological dependence
Nursing
Advanced practice nursing
Intervention development and fidelity
Home care
Clinical guidelines and evidence-based practice
Qualitative analysis
Phenomenology
Quantitative analysis
Mixed methods
Symptom management
Data abstraction
Electronic health record
Complex care needs
Medically fragile
Systematic review
Blood donation
Sickle cell disease and thalassemia
Theory development
Resilience